Sonja S, Cammie K, Christi B, Cathy B, Denise M, Julia A, Beverly B, June K, Charlene (cookiebaker), GaleR, Trixia T, Katlyn T, Renee L, Tree, Jackie K, Marilynn B, Kittie C, Laura P, Emily D. Jennifer K
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Dear friends, yes indeed it seems as though I'm in a a complete fog... I sleep and I wake and then I "think" I'm awake and then I realize that I'm falling asleep again. It is really not very fun because I have no sense of anything. I really feel like I'm floating along not sure where I am, but darn it I want to get this post done.
Kevin has been doing a great job getting me up and we have gotten out for a couple of outings, a short walk to the park, a quick trip to the grocery store etc. Its all a blur to me and to be honest, I can't hardly keep anything straight. Don't ask me any important questions because I won't remember what you asked me or how I answered you.
Yesterday was Saturday, I'm reminding myself for my own benefit... and Kevin de-accessed the port yesterday afternoon. That was the infusion pump for the 5-FU. I've added a few photos of the process which wasn't really that bad.
Here is a picture of the IV still attached. There was a bit of loose dried blood, but it wasn't painful or anything. I checked with the nurse at the infusion center and was told that it was ok.
Always the comedian... that darn lovable hubby of mine!
Just pulling off the plastic cover.
IV released.
Free at last.
The haze continues from Thursday and it just seems like it doesn't want to end. I know that tomorrow will be another day, but right now I'm too tired and empty to wait for the next day.
Until next time.
-Katie
27 comments:
Your doing real good, and hubby getting you up and out it's oh so important that you try and do some normal day to day things. Man great team work! Hugs, Diane
HUGS!
My goodness you need a hug. Be strong, the haze will lift and you will have clear days again. Just think of everything like a west coast winter, wet, grey, foggy but when it lifts and spring apears there is nothing like it. YOur spring is just around the corner!
R
Big soft hugs to you--and to that good husband of yours as well. I hold you in my thoughts and send you my best wishes! I hope tomorrow the fog will lift~Jay
Katie, I am glad you are photojournaling and just journaling all of this. My friend Kathy reminded me of how the steroids pre-chemo made her so unable to sleep and made her irritable. I don't know how I could have forgotten since I traveled to Houston with her for about 1/2 of the treatments. I'd be SO tired (the night before chemo) after the drive and Chatty Kathy (ha, ha) would kick into high gear. She is normally a very paced, methodical person, NOT hyper. Then, the day after chemo and especially the weekend after she was wiped out. I'll ask her if it was foggy.
You just look so cute. Love how Kevin is caring for you.
Katie,
You are hanging in there so well! The fog will lift and you will again feel connected and active in all your do. Your hubby is so wonderful too - such an amazing team you both make. Many hearts and prayers are being sent your way hoping for the day when you can truly say "All Clear!"
-Holly in SoCal
Hi - have just found your story and read it. My heart goes out to you and your family with much prayer for you to come through this. My thoughts are with you.
Debbie M
sweet greetings to you and your family!!! You're in my heart hun!!!
Saskia :)
Gosh Kevin is liking those rubber gloves just a tad too much lol! I'm so pleased heis there to keep your spitits lifted.
I imagine it's not the nicest process for either of you to have to do.
Love you katie, be strong fog will soon dissappeaar.
Katie the chemo fog is frustrating but hang in there it will lift for a brighter day. Praying for you and your family.
Hi Katie! My family will pray and believe Jesus for healing! Your fight is inspiring to me! God bless you and hold on to Jesus. His grace is sufficient!
Hang in there...you and your hubby make a great team...
Be strong, Katie! {{{{I am sending hundred of warms hugs to you and your lovely family}}}}}
Edith:)
I'm sorry that you feel in such a haze, Katie. I wish it wasn't like that for you. Just know I think you're awesome, and after seeing your humorous husband I think he's pretty awesome too. . .looks like you guys make a pretty good pair ;)
Katie, I have been away from the stamping scene for many months now (my husband asked for a divorce, my kids & I have moved, etc.), and until just a few minutes ago, when I was visiting Claire Brennan's blog, I had absolutely no idea what you've been dealing with. Please know that another person is on your team now...praying and thinking about you, your husband and your children. I truly hope that sharing your journey is a comfort to you and that God (however you feel Him and in whatever way you believe) is with you every step of the way. Hugs and more! Erin
Morning Katie.
Thinking of you...
Love ya!
em
Katie, you're so brave! Ugh... I'd be bawling, but you have proven to be inspirational. Throughout the day you come to my mind and I know it's God telling me to stop what I'm doing and say a prayer for you. See? He's on your team and He won't let you down. Stay strong!
Sorry you are in a haze Katie. You know that it will left soon so just keep on feeling your way through it. So glad you have God, Keven and the boys to help guide you.
Big hugs!
True :D
Katie
I am so happy and grateful that you have such a wonderful husband. A strong support system is so important and it looks like you have exactly that. Thanks again for sharing your journey with us all.
Love you
Christi
fog isn't always a bad thing...think of it as a temporary respite...soon the fog will clear and the blue clouds and sunshine will re-appear. the fog is telling you to rest, take it easy, be good to yourself. you are an amazing person. <3
Hugs to you and your hubby! You are in my thoughts daily!
Hang in there Katie! I prayer that the fog lifts soon.
You have a wonderful hubby! I can see in the photos that you're in a bit of a fog... lucky you have someone else to take the reins! :)
Hang in there sweet Katie. Hopefully the fog with clear soon. Also three cheers for your wonderful hubby!!!
When the fog lifts there will be a beautiful sunny day!! Sending lots of hugs and kisses to you and your family!!
I'm glad you got my card all the way from NYC....stay strong, you are an inspiration for documenting the good and the bad of this journey!
Katie, you're a remarkably brave woman. We are all rooting for you. Thank you so much for giving us all such an intimate birds eye view of your journey. Love you.
As I always do, I'm sending hugs to you, but now too for that wonderful husband of yours as well. I relate to him and I know what he is going through, and probably know a lot of the thoughts that go through his mind. You are lucky to have him and he, lucky to have you. I am so proud of the both of you. Stay strong for each other. . .you'll get through this. Best, Curt
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