Thursday, June 23, 2011

A Bump in the Road

Dear friends,

Well, today I got some unexpected news at the Dr.'s.  We went in with our normal expectations since this was a regularly scheduled appointment, but we ended up with some news that has us some what unsettled.  My marker numbers have doubled since the last time they were taken and although the numbers aren't as high as they were way back in December, it is still not positive news.  As to what's going on, it is still speculative, but we have decided to be pro-active.  I am having another stomach/pelvis CT scan tomorrow and will follow up with the Dr. on Tuesday.  Other than messing with our heads and emotions, we just don't know what the next step will be until it's here.  This could totally be a fluke... we just don't know.

Edited to add:  Tumor markers are what I'm talking about and trust me this gets confusing, but essentially, these numbers are gotten from blood work and represent a specific substance that is produced by tumor cells whether they be cancerous or benign.  When marker numbers go up, it generally signifies that there is more activity going on whether it be new tumors or growth in tumors.  I believe that I've been having the markers checked either every 2 or 4 weeks.  We of course use last December numbers as a benchmark and up to this point in time, my numbers had decreased significantly and then had continued to slowly lower until now of course.

It's news that you don't want to hear either, but I know that you would want to know since my journey has become so entwined with many of you.  I want to share with you as we travel along.

I'm hoping to feel a bit better and do some crafting later and would to share something pretty with you all.  Let me tell you, I have tons of stuff to work with that hasn't seen ink yet and are feeling neglected.

Until next time,

-Katie

40 comments:

Nancy ~ Inkcicles said...

Oh Katie, I am praying even more for you and your family.

LOVE you so much. It's gotta be a fluke.

Alyna said...

i am just praying that you get well soon.
hugs
Alyna

Vicki Wizniuk said...

I'm thinking of you and sending healing thoughts your way. We'll all be anxiously waiting along with you. (((Hugs)))

Cassie said...

Just praying for a fluke, Katie. You are never far from my thoughts.

jackib said...

It's so unfair that so many lovely people such as yourself have such tough paths to follow. I am thinking of you so very often and wishing you could be rid of this cancer and get back to your happy life with your hubby and boys. Yes - let it be a fluke. Please. Sending positive thoughts your way. Peace.

Emily Painter-Davis said...

Once again, I cry for you my friend. I am here for you and on this ride with you, as much as I can be from Texas. I think I'm angry now.. you don't have to be. I'm angry for you! But I'm also prayerful and hopeful and in awe of your grace.

Your package should arrive today... but you may not want it. The boys will. lol I forgot to put your card in it, but I'll send it along.

Everything in the package is perishable.

Hugs...
Em

Bernadette said...

I am praying and hoping along with you that this is just a fluke.

Susan said...

Oh, dear Katie! You are so right that we do not want to hear bad news. Be you are also right that we want you to share your news with us, good or bad. Sending prayers and hugs to you.

Suzi said...

Another prayer warrior here. I do hope you find some encouragement knowing that so many care and are praying for you and your family. . .and I'm one of them!
Hugz!

Barb- NICUGypsy said...

not the news anyone wants to hear, let's pray it is a fluke (there are certainly lab errors). You have been so brave and gracious to share your joys and pains with many of us who were mere strangers to you when this started yet have become friends in through the crafts that we love and the wide reaching loving arms of the internet. God be with you and I await your update after the scan.

Joan V said...

Sending prayers your way. I think of you often.
Yes, medical instrumentation and people make errors, so lets hope your was some kind of misreading. Hoping tomorrow hold better news.

Melissa Bickford said...

Katie, I'm so sorry to hear this news! Keeping you extra close in my thoughts and prayers!!
((hugs))

Joan B said...

I don't know what to say other than I am glad you can share this with us. We are all pulling for you and hope that this is a fluke - they happen. Is there anything you can think of that we can do -- if so ask.

Nancy said...

I am so sorry to read of your little detour news... I am sending you a little strength and will keep you in my thoughts. Hugs to you!

cbuswell said...

thinking of you...

Karen B said...

I will continue to hold you, your family and friends in my thoughts and prayers.

Lorraine said...

I hope it was a mistake or just a temporary jump - and that everything is okay. Continuing to hold you in my thoughts & prayers! Hope you are able to rest and eat okay today/tonight. There's a lot of people sending positive thoughts & prayers your way, Katie!

Steph Mitchell said...

Hugs and prayers from Australia.

Tricia said...

I'll be praying for you over the weekend and as you go through the next few doctor appointments, Katie. Keep fighting!

Christine from FL said...

You are in my prayers. Hugs to you and your family.

Sarah said...

Katie, please stay strong and know that God does answer prayers and He is a healing God. It says that if two or more believe then that mountain has to move. There are more than two that are believing and so therefore, your cancer mountain HAS to move. You and your family are in my thoughts and prayers.

susanc said...

Katie, I'm praying that it is a fluke - they happen. I'll be thinking of you and sending positive vibes. xxx

Kathy said...

Praying for you and your family, Katie. Life is so not understandable, and right now least of all, but I pray, I really pray, that you find peace, Katie, in the Lord. Philippians 4:6-7 are some of my favorite verses because they speak about prayer, praying to God and then once we've prayed to allow the peace of God "which passes all human understanding" to guard your heart and mind in Christ Jesus." It's hard to believe we can have peace in the midst of turmoil, confusion, unsettling circumstances, but we can. If we are believers in Christ, we can have that peace.
hugs,
Kathy

LaurieJ said...

Katie, you are in my prayers.

Sue from Oregon said...

Katie, I am sending my best thoughts your way every day. Hugs

June K. said...

Katie, please know that I am thinking of you. Hugs.

Gina said...

Thank you for trusting us with your uncertainties. Passing on this kind of info must be really difficult for you, but your right, we do want to know when things get more worrying for you. How else would we know to send bigger hugs and stronger prayers. Hang in there! Cancer is a living thing, and will try and fight back...you are strong enough to put it down!!! :) XXX

Barb said...

Katie - still keeping you in my prayers. Hang in there girl!

Hugs, Barb

Ted said...

The prayers won't cease until God has removed this cancer from your body. Please try to be strong. May He grant you peace that only He can provide.

Kim H. said...

Prayers are with you every moment!

Sheri said...

I will pray that this is a fluke but if it is not, know that God, your friends and your family will be beside you every step of the way while you do what you need to do to fight this hideous disease. Love you!

Bobbi-Lynn said...

Will pray that those numbers turn out to mean nothing. (((hugs))) and prayers from Canada

Whimcees said...

Hi Katie!

I am praying! Stay strong!

Hugs,

Barbara Diane

Tameko said...

Praying that God brings healing, and peace to you and your loved ones. May God bless you and yours in a special way.

Tameko

Shazza said...

sorry to hear this, hope your next reuslts have dropped again x

tilly said...

thank you for sharing your journey, you are in my prayers, I wish my sister had done the same as it would have been a help... hoping the numbers are back down in the next count
Tilly

Claire said...

So sorry to hear the not so good news, I hope the next test will be better. I'll be thinking of you all.
Claire

Kelly S. said...

Thinking of you, Katie! Many prayers coming your way...

Dinahsoar said...

Those lab numbers can wreak havoc in your head. They don't tell the whole story--and they are only a snapshot of what was happening the moment they were taken. So...hoping your scans will tell a different story . I know it'll be tough waiting for the results, so I am praying that God will give you extra strength.

Mary Friederichsen said...

Don't give up Katie! Which I know you won't!! But it could just be a fluke. other things can affect it I would think.? Inflammation etc. Especially with your numbers dropping so much. Just think positive! You have so many praying for you! We won't let you down!!:)

Blessings and Hugs,
Mary

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